Come and join the fun at the 18th Annual All In For ALS Casino Night Saturday, November 23rd at the East Bank Club Tickets will be available at the door on event night Our signature casino night event features exciting games …
November 2022 Foundation eNews
Foundation News Grants that make a difference The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we will have funded nearly 80 grants – made possible …
Les Turner ALS Resource Guide
Support Services Les Turner ALS Resource Guide The third edition of the Les Turner ALS Foundation Resource Guide provides information and resources for people living with ALS, family members, caregivers and health professionals. Assembled by the staff of the Lois Insolia …
October 2019 Foundation eNews
Introducing the First-Ever ALS Platform Trial The Sean M. Healey & AMG Center at Massachusetts General Hospital is launching the first-ever ALS platform trial aimed at advancing the development of ALS treatments. Our Lois Insolia ALS Clinic at the Les …
ALS Genetics featuring Lisa Kinsley, MS, CGC, Northwestern Medicine
ALS Genetics featuring Lisa Kinsley, MS, CGC, Northwestern Medicine Tuesday, November 17 12-1pm This talk will cover some genetics basics as well as the inheritance patterns of both sporadic and familial ALS. We will review known familial ALS genes and …
About Us
Our Mission
To provide the most comprehensive care and support to people living with ALS and their families so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of ALS.
Our Vision
A world free of ALS.
ALS Learning Series
The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthly by the Foundation’s Support Services team and clinicians from our Lois Insolia ALS Clinic at Northwestern Medicine. The ALS Learning Series also includes blog posts and articles on ALS research, clinical trials, caregiver support and so much more.
ALS Clinical Trials and Studies
ALS Clinical Trials and Studies The Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine is actively involved in multi-center drug trials. Our clinical research in ALS encompasses a broad range of work, including biomarker studies, …
Comments to the FDA Advisory Committee in Support of Tofersen Approval
RE: FDA-2022-N-0691 Dear FDA Advisory Committee: We write to express our strong support for the approval of tofersen under the FDA’s Accelerated Approval Program. Our organization’s long history of scientific research into SOD1-ALS and our depth of experience supporting people …
Cytokinetics Completes Enrollment in VITALITY-ALS
Thank you to all the ALS patients who have volunteered to participate in the Cytokinetics Phase III clinical trial of tirasemtiv in ALS at the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern …
