Lou Gehrig looked unbreakable. Broad shoulders, powerful arms, he seemed as solid as the Adirondack ash trees that were tooled for baseball bats. His prodigious strength underscored a flare for the dramatic. His major league record 23 career grand slams …
February 2020 Events eNews
NCAA Bracket Challenge for Charity March Madness will be here before you know it! Join our NCAA Bracket Challenge for Charity hosted by our Young ProfessionALS Group. You can win bragging rights and prizes, all in support of people living …
Faces of ALS: The Embodiment of Hope and Help
As we near the end of ALS Awareness Month, facts and statistics about ALS can be found around every corner. The lifetime risk of developing ALS is just 1 in 300. The estimated annual cost of care is $250,000. These figures illustrate …
Difficult Conversations Can Be Some of the Most Important
Making Your End-of-Life Wishes Known Author: Karen Raley Steffens, RN, CHPN, CCM ALS Support Services Coordinator “You may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.” …
Faces of ALS: My Story of Service
ALS is called a rare disease. But for reasons not yet known, veterans are twice as likely to be diagnosed with ALS compared to the general public. Last week, we as a nation honored our brave veterans for their sacrifice …
November 2021 Foundation eNews
Amylyx Pharmaceuticals Has Submitted a New Drug Application to the FDA for AMX0035 to Treat ALS Amylyx Pharmaceuticals today announced it has submitted a New Drug Application (NDA) to the FDA for AMX0035 for the treatment of ALS. This New …
Faces of ALS: Dr. Lisa Wolfe
Dr. Lisa Wolfe – A Fierce and Empowering ALS Advocate We sat down with this year’s Hope Through Caring Award Honoree, Lisa Wolfe, MD, of Northwestern Medicine, who will be recognized at our Hope Through Caring Gala on May 21. …
Faces of ALS: Eloise Nilges
A Lasting Legacy of Love, Faith, and Adventure Recently, Terri experienced her first Mother’s Day without her mom, Eloise. In this month’s “Faces of ALS,” we learn more about Eloise’s journey with ALS and how Terri continues to honor her …
On the passing of Lin Brehmer, a true friend of the ALS community
Chicago radio host Lin Brehmer died today at the age of 68. He was widely known and beloved for his time on-air at WXRT-FM 93.1, but the ALS community in the Midwest knew another side of Lin: a friend, spokesperson …
National ALS Registry
National ALS Registry The National Amyotrophic Lateral Sclerosis (ALS) Registry allows people with ALS to get involved in research and help future generations. Research today may lead to a better understanding and potential treatments tomorrow. By signing up for the …
