We’re excited to share the latest ALS research grants from the Les Turner ALS Center at Northwestern Medicine and highlight a new milestone: in 2024, the Les Turner ALS Foundation is funding more than $1 million in ALS research grants …
Introducing My ALS Decision Tool™ on Genetic Counseling and Testing for Family Members
As a registered nurse, Tina Cascio cared for several people diagnosed with ALS, including her own mother, Pamela. Prior to her mother’s passing, Tina began to experience symptoms that were eerily familiar. “I started having muscle spasms and twitching in …
ALS & Participation in Clinical Research
ALS & Participation In Clinical Research En EspañolDownload guide (PDF)ContentsWhat is clinical research?What are the benefits of participating in a clinical research study?What are the phases of a clinical trial?How do I decide if I want to participate in a …
Are there any disadvantages of using a feeding tube?
It’s important to understand that using a feeding tube can’t cure ALS or stop your ALS symptoms. And there are some disadvantages of using a feeding tube. Select the disadvantages that are important to you. This tool will save your …
My ALS Decision Tool
You can use this tool to learn about your ALS treatment options and make important decisions about your care. As your disease progresses, your ALS care team may recommend treatments like breathing support or a feeding tube to help you stay as healthy and comfortable as possible. Even if you don’t have trouble breathing or eating on your own right now, it’s never too early to start planning ahead for your future care.
As you go through the tool, you’ll learn about some common ALS treatments, answer a few questions to help you think through what is most important to you, and get ready to talk with your ALS care team about your options.
What matters most to you
People choose to use or not to use a feeding tube for many different reasons. It all depends on what matters most to you. What’s more important to you? Remember, there’s no wrong answer. It’s always your decision whether to …
ALS Walk for Life
Get Involved ALS Walk For Life At the Midwest’s largest ALS gathering, thousands of walkers form teams in support of people living with ALS, or who have passed away from ALS, to celebrate and honor their lives. Their efforts allow …
Communication Passport
Support Services My ALS Communication Passport to Quality Care The My ALS Communication Passport to Quality Care is a tool used to gather one’s personal and medical information pertinent to their daily care and quality of life. It is a …
January 2024 Foundation eNews
Local Students doing their part to fight ALS Last semester, students at Elk Grove High School completed a long-running fundraising project for the Les Turner ALS Foundation. Their teacher, Caryn Blanke, started this project 12 years ago with the help …
May 2024 Foundation eNews
We’re Empowering the ALS Community with New Resources and Tools This month, we’re celebrating ALS Awareness Month by announcing groundbreaking new resources that empower people living with ALS and their families. Firstly, we’ve released a new guide, ALS & Participation in …
