NIV uses air pressure to help you breathe. Here’s how it works. You’ll wear a mask that’s attached to a device. There are a few different types of masks, so you can choose the one that’s most comfortable for you. …
What matters most to you
People choose to use or not to use NIV for many different reasons. It all depends on what matters most to you. What’s more important to you? Remember, there’s no wrong answer. It’s always your decision whether to use NIV.
May 2023 Foundation eNews
ALS Awareness Month: Celebrating nurses As ALS Awareness Month continues, we’re taking the opportunity to celebrate the nurses who make an enormous difference for people living with ALS. We can’t possibly thank nurses enough for the care they provide. If you feel …
ALS Learning Series: A Conversation with a Genetic Counselor
Wednesday, January 31, 2024, 12:00 p.m., CST The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation, Mitsubishi Tanabe Pharma America & Biogen …
Faces of ALS: “Everyone deserves a voice…”
Tuesday, April 16 was World Voice Day, a day to talk about the importance of healthy and effective communication. It’s estimated that approximately 75% of all people diagnosed with ALS will need some form of communication assistance. Communication devices are …
Are there any disadvantages of using NIV?
It’s important to understand that NIV can’t cure ALS or stop your ALS symptoms. And there are some disadvantages of using NIV. Select the disadvantages that are important to you. This tool will save your answers so you can look …
July 2024 Foundation eNews
A nurse’s kindness inspires a legacy Christine participates in the Les Turner ALS Walk for Life in memory of her husband, Gary LaPaille, who passed from ALS about 18 months ago. “A nurse affiliated with the Les Turner ALS Foundation …
ALS organizations come together to advocate for FY25 funding priorities to Congress
Delivered to the offices of Sen. Patty Murray and Sen. Susan Collins on the U.S. Senate Committee on Appropriations, and the offices of Rep. Kay Granger and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 5, 2024 …
ELA y La Comunicación
ALS can weaken the muscles you use when speaking and breathing. This can lead to speech changes ranging from mild to severe. With today’s technology, you have options to communicate with the people who are most important to you.
Hope Through Caring Gala 2024
This year, as for the past 35 years, the Les Turner ALS Foundation will bring together Chicago’s top minds in ALS research and care, business, academics, philanthropy, and most importantly, people living with ALS, for one of the city’s most elegant …
