Join our 10th Annual Les Turner Symposium on ALS – Monday, November 9 Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on …
October 2021 Foundation eNews
FOUNDATION NEWS AMX0035 May Slow ALS Progression and Extend Life On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is …
ALS Learning Series: Family Planning and ALS
ALS Learning Series: Family Planning and ALS Featuring Lisa Kinsley, Senior Genetic Counselor, Neurology Department at Northwestern Medicine Thursday, October 7 at 12 p.m. CT Genetic testing for a familial ALS gene may have implications for those who are …
Faces of ALS: Living life to the fullest
Jessica Morris always knew there was a possibility that she might carry the SOD1-ALS gene and eventually get ALS, but she never dwelled on it, keeping busy with her three children – Aidan, Christopher and Mia. In 2020, she began …
ALS Learning Series: Take A Breath, Respiratory Care in ALS
The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthly by the Foundation’s Support Services team and clinicians from our Lois Insolia ALS Clinic at Northwestern Medicine. The ALS Learning Series also includes blog posts and articles on ALS research, clinical trials, caregiver support and so much more.
ALS Learning Series: A conversation with a genetic counselor: Could the ALS in my family be genetic?
The Les Turner ALS Foundation’s online ALS Learning Series is aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to respiratory care, are hosted monthly by the Foundation’s Support Services team and clinicians from our Lois Insolia ALS Clinic at Northwestern Medicine. The ALS Learning Series also includes blog posts and articles on ALS research, clinical trials, caregiver support and so much more.
Faces of ALS: Anita Forté
Anita Forté – Fighting ALS with Positivity and Gratitude After having dealt with multiple ailments the past few years, along with ALS, there’s no doubt that Anita Forté is a fighter. She wakes up each morning and starts the day …
How to Prepare for a Telehealth Visit
Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits. A recent article published in Brain & Life Magazine shared …
June 2020 Events eNews
Upholding Family Values and Traditions For Rosa Elizondo and her teammates, participating in our Strike Out ALS 5k and 1 Mile Run, Walk & Roll allows them to race towards a cure in loving memory of Rosa’s uncle, Alfonso, who …
November 2020 Events eNews
Go All in for ALS this Friday Night A 3 day, 2 night stay at a charming cottage nestled in the Indiana Dunes could be yours! This magical getaway is just one of the silent auction prizes offered at our …
