In response to a recent congressional hearing focused on the slow pace of drug approvals for neurological diseases, Les Turner ALS Foundation’s CEO Andrea Pauls Backman spoke with Suz Redfearn, a reporter for FDA News. Andrea was quoted extensively in …
December 2022 Foundation eNews
Foundation News Giving back in gratitude For people who have lost a loved one to ALS, the holidays are a time of reflection and gratitude to those who cared for family and friends during their ALS journey. Victor was 14 …
February 2023 Foundation eNews
Foundation News Calming the destructive cells of ALS One of the reasons that ALS can progress quickly is that certain types of cells in the human body will attack diseased upper motor neurons, which are needed to initiate movement. Once …
ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology
ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology Featuring Janet Bischof-Rosario, Allied Health Supervisor and Occupational Therapist in the Technology Center at the Shirley Ryan AbilityLab and AnneMarie Doyle, Senior Speech-Language Pathologist at Shirley Ryan …
ALS Learning Series: Mobility Aids and Home Modification Tips to Improve Quality of Life in ALS
About the Program: During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in your daily life and learn what information …
Walker Wednesday #5
Celebrate Your Success With Fundraising Prizes Encourage your team to level up their fundraising to earn more exciting fundraising prizes. Fundraising incentive prizes are cumulative, so those who raise over $1,000 will receive all four prizes. Email us if you have …
To find the cause of ALS, researchers look to metabolism within motor neurons
As researchers at the Les Turner ALS Center at Northwestern Medicine search for the root causes of ALS, they are examining processes within the body — even down to the cellular level. In fact, recent research has shown that people …
Research Updates from Dr. Kiskinis’ Lab – September 2015
While the majority of ALS is sporadic, a relatively small, but highly informative, percentage of patients are diagnosed with mutations in various genes which include: SOD1, TDP43 and C9orf72. The goal of the Kiskinis lab is to characterize how these …
Answer ALS Partnership
The Les Turner ALS Foundation is very pleased to announce the Les Turner ALS Research and Patient Center at Northwestern Medicine as the newest member of the single largest coordinated and collaborative effort to end ALS in the history of …
2019: A Year of Progress in Research and Patient Care
As 2019 draws to a close, we’re looking back at some of the recent achievements members of our Les Turner ALS Center at Northwestern Medicine made to ensure our Les Turner ALS families receive the most comprehensive care in Chicagoland …