Support Services Applying for Benefits Use this section to find news on Medicare, Medicaid, VA benefits, grants and other sources of financial support outside of what the Foundation offers. To learn more about financial support the Foundation offers, please visit …
Are there other treatment options?
Depending on your needs and goals, your ALS care team may recommend other treatment options. Invasive ventilation Invasive ventilation is a different type of breathing support device. Depending on your situation, you may have the option to choose between NIV …
Quick recap
Let’s review what you’ve learned so far. Some people with ALS have trouble breathing on their own. Non-invasive ventilation, or NIV, is a special type of medical equipment that can help you breathe. NIV can improve your quality of life …
How will the doctor insert my feeding tube?
You’ll need to have surgery to get a feeding tube. The doctor will make a few small cuts to place the feeding tube inside your stomach. There are 2 different types of feeding tube surgery. Percutaneous radiological insertion of gastrostomy …
What happens before and during surgery?
Here’s what to expect as you get ready for feeding tube surgery. What do I need to do before surgery? In the days leading up to your surgery: You’ll need to stop eating and drinking a few hours before surgery. …
May 2023 Foundation eNews
ALS Awareness Month: Supporting Our Veterans ALS Awareness Month is just about to wrap up. Over the past few weeks we’ve been highlighting different themes, ranging from information about ALS itself to shining a spotlight on members of our community. This …
Call for Comments: Proposed Decision on Medicare & Seat Elevation Systems
UPDATE: As of May 16, 2023, Medicare will formally cover wheelchair seat elevating systems for many types of power wheelchairs. We applaud this decision and are proud to have advocated for it. These systems are vital for those living with a disability. …
July 2023 Foundation eNews
Future ALS Walk for Life Captains in the Making Our ALS Walk for Life team captains play a vital role in the event’s success. They tirelessly recruit teammates and raise funds through various channels, including emails, phone calls, and social …
Trusted Resources to Learn About ALS
Trusted Resources to Learn About ALS The internet has a wealth of information about ALS, but it can be hard to sift through everything and separate fact from fiction. Below are some trusted websites that provide credible and reliable information …
ALS Learning Series: Control your phone with your voice
Thursday, June 20, at 12:00 P.M. CST What should someone with ALS do to control their phone or tablet, when direct tapping on the screen becomes difficult? This ALS Learning Session will describe in detail how to control your mobile …
