We are pleased that the FDA has granted accelerated approval to tofersen for treatment of SOD1-ALS. As the first FDA-approved treatment to target a genetic cause of ALS, this is a landmark moment for the ALS community. We are grateful …
‘New’ ALS gene destabilizes neuron’s structure and chokes off its nucleus
As many as 2% of all ALS cases have been linked to mutations in the gene NEK1, making it one of the top-known causes of the disease. But it wasn’t known how the mutated gene disrupts the function of the …
Amylyx Publishes CENTAUR Survival Data Demonstrating Statistically Significant Survival Benefit of AMX0035 for People with ALS
We are excited to share some promising data regarding the CENTAUR trial evaluating AMX0035 in people with ALS on overall survival analysis, published today (October 16, 2020) in the neuromuscular disease journal Muscle & Nerve. The survival analysis followed each …
Ways to Donate
Ways to Donate En EspañolThank you for your interest in supporting ALS care and research through the Les Turner ALS Foundation. There may be no better way to celebrate the life and memory of a loved one than a gift …
Trivia Night 2016
Head back to school and test your intellectual might at the 1st annual trivia night raising funds for the Les Turner ALS Foundation. Come and see old friends and make new ones. The night will include five rounds of trivia …
Barrington Support Group
Meets the Second Saturday of each month from 10:30am – 12:00 pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at [email protected] to RSVP *Meetings will be held over Zoom and a Zoom invitation will be sent …
Rooney Family Memorial Support Group
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at [email protected] to RSVP *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for …
Wheaton Support Group
Meets the Fourth Saturday of each month from 10:30am-12:00pm Facilitator(s): Rochelle Walwer, LCSW RSVP: Click here to register *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Wheaton Support Group
Meets the Fourth Saturday of each month from 10:30am-12:00pm Facilitator(s): Rochelle Walwer, LCSW RSVP: Click here to register *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Wheaton Support Group
Meets the Fourth Saturday of each month from 10:30am-12:00pm Facilitator(s): Rochelle Walwer, LCSW RSVP: Click here to register *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
